Go Back   Team-BHP > Around the Corner > Shifting gears


Reply
 
Thread Tools Search this Thread
Old 16th May 2010, 15:18   #31
Senior - BHPian
 
tanwaramit's Avatar
 
Join Date: Aug 2005
Location: Dilwalon ki Dilli
Posts: 1,888
Thanked: 330 Times
Default

Hi Samurai,

Thats a very well written writeup. Thanks for sharing.

My kid is having similar symptoms, however doctors havent yet declared autism for her. I am glued on this thread on more updates.
tanwaramit is offline   Reply With Quote
Old 16th May 2010, 23:23   #32
Team-BHP Support
 
Samurai's Avatar
 
Join Date: Jan 2005
Location: B'lore-Manipal
Posts: 22,042
Thanked: 13,488 Times
Default

Amit,

There is no alternative than visit a child psychologist/psychiatrist or neurologist or autism center for a thorough evaluation. Regular doctors or pediatricians are generally very slow in identifying autism. And don't try to make your own evaluation based on Internet posts.

Last edited by Samurai : 16th May 2010 at 23:44.
Samurai is offline   Reply With Quote
Old 18th May 2010, 14:16   #33
Senior - BHPian
 
narayan's Avatar
 
Join Date: Aug 2006
Location: Singapore
Posts: 2,674
Thanked: 958 Times
Default

my son is autistic. 4 years old. am based in Chennai.

we have been following a combination of DAN protocol ( a diet/supplement based therapy mode ), GFCFSF diet ( gluten, caesin, sugar free ) and ABA based therapy

of course, we follow the above to the best possible/available resources in India ( which I would say is at maybe 40-50% of what is available in the west -especially the US )

BUT with this, we saw very good improvement over the last 1 year when my son has been subjected to the same.

autism is clearly taking the shape of an epidemic

I just casually came to this section today wondering whether TBHP might have a thread on autism and i find it in the FIRST PAGE.

THAT SAYS A LOT ABOUT THE PREVALENCE OF AUTISM

any parents new to the world of autism, feel free to reach out for any info, queries or any assistance in Chennai. happy to help
narayan is offline   Reply With Quote
Old 18th May 2010, 14:53   #34
BHPian
 
ikoneer's Avatar
 
Join Date: Aug 2007
Location: chennai
Posts: 486
Thanked: 6 Times
Default

I know a person who is running a school for Autism in chennai, they provide therpay to about 7 -10 children.
Please let me know if any information is required for anything, i can talk to them and share the same here.
ikoneer is offline   Reply With Quote
Old 19th May 2010, 11:01   #35
Team-BHP Support
 
Samurai's Avatar
 
Join Date: Jan 2005
Location: B'lore-Manipal
Posts: 22,042
Thanked: 13,488 Times
Default

Narayan,

Does DAN protocol include homeopathy also? Would like to know more. Also it would be helpful if you share how you went gluten free, and what changes you saw.

We are finding it very difficult to go GF. My wife hasn't seen any change in couple of kids who are on GFCF so we are sitting on the fence. Why Sugar free, is your son hyperactive?
Samurai is offline   Reply With Quote
Old 19th May 2010, 11:57   #36
Senior - BHPian
 
narayan's Avatar
 
Join Date: Aug 2006
Location: Singapore
Posts: 2,674
Thanked: 958 Times
Default

Samurai
DAN does not include homeopathy
please refer this site for lot of resources on DAN - www.autism.com

Gluten free means avoiding wheat maida etc. the main thing that kids like is biscuits. it was difficult initially. but now its better. off late we see some revival in my sons interest in biscuits !

there are alternatives available. you get gluten free atta from sunira foods. pls check their website for online ordering. a bit expensive but gives some variety for the kids. you also get gluten free cookies.

if you have some people in US - ask them to carry GFCFSF foods when they come here.

you are right, for some kids the result may not show. i did some reading on the gluten peptide effect and have been convinced by that logic

frankly, on a practical basis, its very very difficult to observe and check what the impact of removing gluten is. for e.g some say, it takes 3-6 weeks for existing gluten in the sytem to be purged.
for some kids, gluten alone may not give that dramatic results but in association with other supplements, it may prove useful

so i am going purely by the logic of gluten's harmful effect. i have not verified its effect in isolation but have seen an overall improvement

sugar free - now this is more to do with removing the very food that the harmful yeast feeds on. many autistic kids have yeast infections in their gut. this leads/promotes the leaky gut condition. removing sugar ( processed sugar ) is a way to starve the yeast

alternatives is to use honey, jaggery ( again only in moderation )

come to think of it GFCFSF diet is as such one of the MOST healthiest diet. so putting our kids on this diet would only help them. of course administration is difficult but worth the effort
narayan is offline   Reply With Quote
Old 19th May 2010, 22:48   #37
BHPian
 
Join Date: May 2010
Location: Bangalore
Posts: 516
Thanked: 55 Times
Default

Quote:
Originally Posted by wildon View Post
A Special Educator who is working with my wife suggested this academy. A B Academy - HRBR Layout.

Dr.Smita Awasthi.

As per her getting admission is very difficult.

Contact Person name: Rumno Mukherjee : 9945562005
Website: Behavior Momentum (I) Pvt Limited
My wife works as a ABA therapist in this academy.
She says that there is a long waiting list for admission. And still there are parents approaching them for registering.
It seems this is the only centre in India which practises ABA-only-not-any-other-therapy.
ch.nathan is offline   Reply With Quote
Old 5th June 2010, 01:13   #38
Distinguished - BHPian
 
Mpower's Avatar
 
Join Date: Mar 2005
Location: Bangalore
Posts: 10,428
Thanked: 1,676 Times
Default

Some disturbing statistics I saw on TV.

80% of couples with an Autistic child in America end up in divorce. Much higher than the normal rate. As if the kid doesn't have enough to go through already.

Last edited by Mpower : 5th June 2010 at 05:54.
Mpower is offline   Reply With Quote
Old 5th June 2010, 01:31   #39
BHPian
 
Join Date: Apr 2009
Location: .
Posts: 478
Thanked: 110 Times
Default :)

Quote:
Relatives and friends often treat us with long faces and unhealthy amount of tch tch thrown our way. It is strange to find ourselves more cheerful than them. We are not drowning ourselves in sorrow, we just wish others don't try to drown us either.
I just do not have words to type. But, I Know you two are wonderful parents . The ones with the most difficult problems can laugh more at life! What does'nt kill, you makes you stronger!
YaeJay is offline   Reply With Quote
Old 5th June 2010, 06:19   #40
Senior - BHPian
 
Join Date: Mar 2007
Location: Mumbai
Posts: 1,444
Thanked: 281 Times
Default

Quote:
Originally Posted by Samurai View Post
My son is on B-Complex, vitamin C, probiotiocs and cod liver oil supplements. Iíve also been advised to go on GFCF diet (gluten free, casein free). Removing casein was easy, my son never liked any dairy products to start with. Gluten however is a nightmare, it means no wheat, no sooji, no oats, no corn and no to even more stuff ( www.gfcfdiet.com ). Until now Iíve only reduced gluten.

The biggest problem is taking cakes and biscuits away from kids. Iíve heard there is a place in Bangalore selling GFCF snacks, donít have the details. But there is an online store Sunira Foods and they deliver anywhere in India. As my sonís doc is pushing for it, I have to give it a try.
I don't think any of the double blind studies done on autism & GFCD diet have shown that a GFCD diet helps. However, going GFCD very rarely harms. A lot of Gastro-Instestinal problems are solved by GFCD.

Quote:
Originally Posted by narayan View Post
autism is clearly taking the shape of an epidemic
There is a conspiracy theory in the US saying that vaccination is a cause of the autism epidemic. However, there is no scientific basis behind this.

I would avoid Ayurvedic treatment for autism. There is another unproven theory going around that heavy metals are a cause of autism & a lot of Ayurvedic medicines contain heavy metals.
I have made a post earlier about some side-effects of Ayurvedic medicines because of their heavy metal content - http://www.team-bhp.com/forum/shifti...ml#post1492293 (Remedy for Arthritis)

Another thing about Autism is that a decent percentage of autistic people have extraordinary ability in some other area. i.e. what god taketh in the social behaviour area, he giveth in some other area - Savant syndrome - Wikipedia, the free encyclopedia

The guy who invented Bit Torrents suffers from Aspergers. There are a lot of such geniuses who are autistic.
carboy is offline   Reply With Quote
Old 5th June 2010, 13:13   #41
Team-BHP Support
 
Samurai's Avatar
 
Join Date: Jan 2005
Location: B'lore-Manipal
Posts: 22,042
Thanked: 13,488 Times
Default

Carboy, can you kindly refrain from making sensational statements like that doesn't work, this doesn't work, etc. We are all capable of doing Google research here and can find counter statements for the same. And trust me, parents of Autistic kids would have done lot more than googling. They would have talked to numerous doctors, therapists, parents of other autistic kids undergoing various treatments, etc.

This is a thread for people who have near and dear ones having autism condition. Autism is a such a condition that even modern medicine is pretty much clueless about a definite cure. And it is well known in autism circles that same treatment doesn't show similar results across all autistic kids. So we throw stones in every direction hoping something will eventually hit the target.

Frankly we don't care if double blind studies are done or not. If another parent says GFCF worked for their kids, we are inclined to try it for a while. If it doesn't work for us, we'll look at something else.

If you know something that worked, let us know. With so little treatment options available to us, we don't want to hear what doesn't work, especially when it is based on Google research.
Samurai is offline   Reply With Quote
Old 7th June 2010, 14:21   #42
Team-BHP Support
 
Samurai's Avatar
 
Join Date: Jan 2005
Location: B'lore-Manipal
Posts: 22,042
Thanked: 13,488 Times
Default

Quote:
Originally Posted by Mpower View Post
Some disturbing statistics I saw on TV.

80% of couples with an Autistic child in America end up in divorce. Much higher than the normal rate. As if the kid doesn't have enough to go through already.
My wife's comments on that in italics.

It's the stress. Agreed it's hard for the kid, but what our kids put us through is something else. We too crack up sometime or the other. My son's institute often has counselling for parents for this very reason.

Here atleast we can hire maids to cook and clean and concentrate on the child. I can imagine it being so much harder in US with no help and very little family support.
Samurai is offline   Reply With Quote
Old 7th June 2010, 14:40   #43
Senior - BHPian
 
Join Date: Oct 2009
Location: BANG-A-LURE.
Posts: 1,067
Thanked: 3,137 Times
Default

Quote:
Originally Posted by Samurai View Post
My wife's comments on that in italics.

It's the stress. Agreed it's hard for the kid, but what our kids put us through is something else. We too crack up sometime or the other. My son's institute often has counselling for parents for this very reason.

Here atleast we can hire maids to cook and clean and concentrate on the child. I can imagine it being so much harder in US with no help and very little family support.
Hi,

I completely agree with your wife.Parents play a vital role here, they need to keep thier cool.
My friend had to leave her job to concentrate on her daughter, fortunately she could take services of a very good therapist and that has worked wonders.
SILVERWOOD is offline   Reply With Quote
Old 7th June 2010, 14:46   #44
Team-BHP Support
 
benbsb29's Avatar
 
Join Date: Nov 2006
Location: Brisbane
Posts: 7,971
Thanked: 3,387 Times
Default

Samurai, i didnt go through this thread earlier, and must say it was a great idea to put your experiences and learnings here for the benefit of others. I got to know about your son's special needs only when we met.

As rightly mentioned, denial is what stops parents from seeking treatment for the little one. A relative's daughter has a special condition which demanded attention from an early age. However, the parents lived in denial all along, and when they finally ralized something was amiss, a lot of time had passed. It was when the younger one (who was just a year younger) started responding much differently that reality struck. The little one is now undergoing theraphy at AIISH in Mysore, with both parents having to live seperately to balance their lives, very much as Samurai had mentioned in this post of his : http://www.team-bhp.com/forum/1853666-post27.html

Not sure if the child is autistic, but i make sure i always show greater affection towards her over the normal child whenever i meet her so she never feels different.
benbsb29 is offline   Reply With Quote
Old 8th June 2010, 11:57   #45
BHPian
 
hemanthisgreat's Avatar
 
Join Date: Jul 2007
Location: Bangalore
Posts: 587
Thanked: 8 Times
Default

Read this article in Times, that " Doctors find way to reverse autism effects"

Doctors find way to reverse autism effects - Bangalore - City - The Times of India
hemanthisgreat is offline   Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads
Thread Thread Starter Forum Replies Last Post
The Team-Bhp thread of shame (Pray you arent mentioned in this thread ) speedsatya Street Experiences 10 24th February 2012 14:27
Wi-fi linked to childhood autism!!! Venkatesh.C Shifting gears 11 26th November 2007 12:46


All times are GMT +5.5. The time now is 18:51.

Copyright ©2000 - 2017, Team-BHP.com
Proudly powered by E2E Networks