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Old 18th February 2011, 22:02   #76
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Default Re: The Autism Thread

Hi Guys,

I am looking for any updates on this Now, a cap that scans the brain in an hour - The Times of India

The Doctors details are Aditi Shankardass - Wikipedia, the free encyclopedia
And this is her Video Aditi Shankardass: A second opinion on learning disorders | Video on TED.com

My son is 6 years old and has moderate Autism, this might help answer some questions

Thanks
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Old 18th February 2011, 23:30   #77
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The TED talk happened in Mysore, probably in AISH. She said it is now available in India, where? Is it only in Apollo Hospital in New Delhi?

BTW, the TOI article carelessly says mental disorders like autism and dyslexia, which is wrong. It is a neurological disorder.
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Old 18th February 2011, 23:47   #78
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Thats TOI, most of the time they are factually incorrect. I guess their Tag-line ought to be "Read with a Bucket-Full of Salt"

Back to topic, I am unaware about the current status, as he TOI is from 2009, I will be calling around in the morning and check if anything has progressed, hoping to have more minds working along-with me on this one. Sometimes just dont know where to look.


EDIT:
Jaslok Hospital Mumbai does have something will check it out over the weekend.
http://www.jaslokhospital.net/hospital/Psychiatry.htm

Last edited by neofromcapone : 19th February 2011 at 00:00. Reason: More Infor
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Old 19th February 2011, 00:50   #79
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Originally Posted by Samurai View Post

BTW, the TOI article carelessly says mental disorders like autism and dyslexia, which is wrong. It is a neurological disorder.
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Originally Posted by neofromcapone View Post
Thats TOI, most of the time they are factually incorrect. I guess their Tag-line ought to be "Read with a Bucket-Full of Salt"
TOI is correct. Both Autism & Dyslexia are mental disorders.

They may or may not also be neurological disorders, but they are mental disorders.
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Old 19th February 2011, 09:16   #80
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@Carboy, irrespective of TOI being correct or not: How do you know what category of illness this is ? If you are a qualified medical person, and know this area, please do share your knowledge so that the people here can benefit from it.

Else, I suggest you desist from making comments.

People like Samurai may not be qualified to make comments, but they are living with that and are affected by it.
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Old 19th February 2011, 09:49   #81
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Default Re: The Autism Thread

As per some study that i read somewhere long back.

Autism is purely a development disability and not a mental illness.
However, there is a high percentage of autism affected people with some mental disorders.

Therefore, lets not categorically confirm that it's a pure mental illness unless someone with medical knowledge authority confirms for sure.
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Old 19th February 2011, 10:24   #82
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Originally Posted by mobike008 View Post
Autism is purely a development disability and not a mental illness.
Developmental Disorder ? Could be.
Some more info here:
The stats are mindboggling and so are the commonness of this disorder now a days.

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Old 19th February 2011, 10:39   #83
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I currently have a highly qualified doctor (my uncle) staying in my house for the weekend. He has over 40 years of professional experience spanning India, UK and US. So I asked him about this. He answer was not a simple one. Classification has been changing over years.

Medically speaking, any non-physical anomaly can fall under the mental disorder umbrella. But labeling every non-physical anomaly as mental disorder creates an entirely different perception in the mind of non-medical community. Great scientists like Newton, Einstein or Edison all had mental disorders if you take this line of thinking. Even depression is a mental disorder.

That is why many of the development disorders are classified under autism spectrum instead of mental disorder. For Google warriors this may be all cannon fodder for arguing on the Internet for time-pass. But parents of autistic kids like me, we prefer autism or neurological disorder because that is the word used by all the experts we have met in the last two years.

In fact, the last expert we met in AIISH (Mysore), disagreed with the autism label for our son. After observing him for an hour and talking to us about all our experiences, she concluded that what he has is sensory processing disorder.
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Old 19th February 2011, 11:11   #84
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Else, I suggest you desist from making comments.
If you feel I have broken some rule of T-BHP, please report it to the moderators - otherwise please don't tell me what I should or should not write. I have as much right as you or anyone else on the forum. I may be wrong or may not be an expert but I surely am not going to desist from making comments.

I think The Diagnostic and Statistical Manual of Mental Disorders which is the bible of Psychiatrists classifies both Autism & Dyslexia as Mental Disorders.

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I currently have a highly qualified doctor (my uncle) staying in my house for the weekend. He has over 40 years of professional experience spanning India, UK and US. So I asked him about this. He answer was not a simple one. Classification has been changing over years.

Medically speaking, any non-physical anomaly can fall under the mental disorder umbrella. But labeling every non-physical anomaly as mental disorder creates an entirely different perception in the mind of non-medical community. Great scientists like Newton, Einstein or Edison all had mental disorders if you take this line of thinking. Even depression is a mental disorder.
Absolutely. Depression is surely a mental disorder.
I have close & extended family members who suffer from depression, panic attacks, paranoia, anxiety, borderline personality disorder etc. They have visited doctors and also take long term medication. All of these are mental disorders.

There are 2 ways of dealing with this. One is by not calling it a mental disorder. The 2nd is by removing the stigma associated with mental disorders - thinking it's a short term or long term illness just like other illnesses. I prefer the second way. I am not saying it's the better way - just say it's my way.

All I am saying here is that TOI is not wrong. If the DSM has classified it as a mental disorder, then TOI isn't wrong.

Last edited by carboy : 19th February 2011 at 11:21.
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Old 19th February 2011, 12:02   #85
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I am experiencing the same from lot of friends and relatives about the sorry state of health condition of my parents.
Just bumped into this thread. Samurai, appreciate you as a father & your hands on approach. Nothing in the world can be more gratifying than seeing the smile on your beloved child's face when he knows that the reassuring hand of his father is on his head. We cannot change things, situations & circumstances in our lives, but we can only pray to God to give us the strength to deal with it & be pro-active in every possible way.

And yes Samabhi, i am facing the same with my relatives, hence we haven't shared most of the things we're facing with my parents (very serious issues) with them as more than strength, their show of pity weighs you down. Inspite of all the seriousness & sombre mood, we still try to have a positive & happy go lucky attitude in our family, whatever the problems we face.

Really nice of you Samurai to share all of this. Positive attitude is the key.
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Old 7th August 2011, 05:07   #86
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How about alternative methods to cure autism?

Yes, there are any number of them on the market. We parents are a desperate lot ready to try anything that promises a cure.

So we have CDs which promise a cure by listening to it in your sleep. We have bath powders which claim to cleanse the body of toxins and hence provide a cure. We have friends and relatives suggesting the best of temples and churches and godmen. I have not tried anything besides temples and churches so am not in a position to comment here.

There is also accupressure, chelation therapy, oxygen therapy etc which some parents try out. I am not convinced enough to try though.

Hi guys, I know this is an old thread, but i just stumbled across it and had to put in my 2 paise...
Me and my staff have done a fair bit of work with kids and adults with autism, aspergers, down syndrome and other genetic modifications, mental disorders, diabilities or whatever you want to call them.
Just wondering, has anyone tried animal assisted therapy? We offer it as a service (subsidized) here in Indore, and while this is not a business advertisement, I would like to throw the option out there. We use horses, or hippotherapy. It has been proven to be a great contributing factor in cognitive development, refinement of gross and fine motor skills, confidence, communication and other aspects that these individuals seem to have trouble with. It basically revolves around spending time with, interacting with the animal and even some saddle time which involves exercises and muscle training. Since there is no qualification for "disabled riding" coaches (or any other kind for that matter) We generally do this with a physiotherapist/counsellor working in tandem with one of our instructors who is there only for safety purposes and guidance. We do however do alot of research on the practise and have developed and counselled our staff to be close to if not at par with international "Disabled Riding" coaches.
If you google hippotherapy, or equine assisted therapy you can find out more.
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Old 22nd September 2011, 09:43   #87
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Default This US software firm runs on autistic testers

Article from TOI today:

This US software firm runs on autistic testers

Last edited by ch.nathan : 22nd September 2011 at 09:45.
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Old 10th February 2012, 12:01   #88
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Dear Samurai,

A friend of mine, who will be shifting to Banglore is looking for mainstream Schools which will accept a child with special needs. Could you suggest any?

Regards,
Ajo
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Old 20th March 2012, 18:28   #89
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In fact, the last expert we met in AIISH (Mysore), disagreed with the autism label for our son. After observing him for an hour and talking to us about all our experiences, she concluded that what he has is sensory processing disorder.
I didn't know this thread existed in Team BHP. Wish I had come across this earlier...

My daughter was diagnosed with ASD 9 months back. My struggles were similar to yours. She started counseling 9 months back, and is going to CCDD, run by Dr. Nandini Mundkur, a renowned specialist who is on the world Autism board. The centre is in Malleshwaram.

She is now 4 years old, and has been going to Bethany school, but Bethany is not very supportive of such children. She has been asked to stay back a year.

We are thinking of trying out other schools that are more committed and supportive. Let's see...

It has been a mixed journey, but nothing seems to be working really well. I am trying to figure out what else we can do - apart from counseling - that can help her.
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Old 20th March 2012, 18:33   #90
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I am truly sorry to hear this. I will be back in Bangalore next week, we can probably meet. We have been going through this for 3 years and can share our experience.

Last edited by Samurai : 20th March 2012 at 18:34.
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