Go Back   Team-BHP > Around the Corner > Shifting gears


Reply
 
Thread Tools Search this Thread
Old 20th March 2012, 18:39   #91
Senior - BHPian
 
nilanjanray's Avatar
 
Join Date: Oct 2007
Location: Bangalore
Posts: 1,822
Thanked: 2,376 Times
Default Re: The Autism Thread

Quote:
Originally Posted by Samurai View Post
I am truly sorry to hear this. I will be back in Bangalore next week, we can probably meet. We have been going through this for 3 years and can share our experience.
Sure, real good idea. Will PM you...
nilanjanray is online now   Reply With Quote
Old 20th March 2012, 20:18   #92
BHPian
 
neofromcapone's Avatar
 
Join Date: Nov 2007
Location: Bombay
Posts: 281
Thanked: 113 Times
Default Re: The Autism Thread

@nilanjanray - I want to say I am sorry, but when I thought about it, there is nothing to be sorry about. But yes, I understand where you are right now, when my son was diagnosed with autism, I could not even spell it right, leave alone understand what it is.

Its been a little under 4 years now, and we are doing all we can to provide him with the tools and therapies, samurai has done a great thing by initiating this thread, at least we can support each other, exchange information.

Godspeed and bless your little angel.
neofromcapone is offline   Reply With Quote
Old 29th March 2012, 13:42   #93
Senior - BHPian
 
nilanjanray's Avatar
 
Join Date: Oct 2007
Location: Bangalore
Posts: 1,822
Thanked: 2,376 Times
Default Re: The Autism Thread

Quote:
Originally Posted by neofromcapone View Post
Its been a little under 4 years now, and we are doing all we can to provide him with the tools and therapies, samurai has done a great thing by initiating this thread, at least we can support each other, exchange information.

Godspeed and bless your little angel.
Thanks! With mutual support and updates the journey becomes less daunting and lonely.

Btw, does anyone have contacts in Headstart Koramangala? Montessori seems to be a good option for kids with ASD...

OT: why can't I thank anyone for a post on this thread?
nilanjanray is online now   Reply With Quote
Old 29th March 2012, 16:33   #94
BHPian
 
BANDHAV's Avatar
 
Join Date: May 2009
Location: Ghaziabad
Posts: 877
Thanked: 260 Times
Default Re: The Autism Thread

^^The thanks feature has been removed from this section of forum.

Quote:
Originally Posted by Samurai View Post
I am truly sorry to hear this. I will be back in Bangalore next week, we can probably meet. We have been going through this for 3 years and can share our experience.
Samurai, your son is almost 5 & 1/2 years old now, I would like you to updates the forum with updates from your wife' side.
BANDHAV is offline   Reply With Quote
Old 21st April 2012, 14:18   #95
BHPian
 
Join Date: Nov 2010
Location: pune
Posts: 53
Thanked: 30 Times
Default Re: The Autism Thread

Kudos to all the parents who are bravely struggling with this issue. Unfortunately, it seems there still limited clairty on many parts of this problem. I remember reading Sridhar Vembu's blog and was struck with the courage and honesty with which he deals with it. Not sure if it is still updated, but there was a lot learning in it.
grazd is offline   Reply With Quote
Old 24th April 2012, 10:00   #96
Senior - BHPian
 
nilanjanray's Avatar
 
Join Date: Oct 2007
Location: Bangalore
Posts: 1,822
Thanked: 2,376 Times
Default Re: The Autism Thread

Has anyone heard about/have any feedback on Behaviour Momentum India, which uses an ABA-based approach? The organization is headed by Smita Awasthi. They have started a centre very close to our house, in Carmelram.

Last edited by nilanjanray : 24th April 2012 at 10:15.
nilanjanray is online now   Reply With Quote
Old 24th April 2012, 10:57   #97
BHPian
 
Join Date: Jun 2011
Location: Ahmedabad
Posts: 318
Thanked: 166 Times
Default Re: The Autism Thread

Came across this link, read the article "Autism reversed with virgin coconut oil" and thought of sharing with you folks:

http://www.coconutresearchcenter.com/hwnl_9-2.htm

Not sure if this really works, but the story is quite impresssive. And if it does, I wonder if desi ghee (clarified butter) esp. from cow milk can also help to some extent.

Incidentally, a close relative's child is autistic, and is also allergic, among several other things, to coconut oil!
RadiantKarma is offline   Reply With Quote
Old 5th June 2012, 16:24   #98
Senior - BHPian
 
nilanjanray's Avatar
 
Join Date: Oct 2007
Location: Bangalore
Posts: 1,822
Thanked: 2,376 Times
Default Re: The Autism Thread

Update:

My daughter has enrolled at the Carmelram Centre of Behaviour Momentum from this month.

She will also start going to a school nearby - the school has promised to give special attention to her needs. We have decided to go for a more intimate set-up than a brand name school where she will not get adequate attention.
nilanjanray is online now   Reply With Quote
Old 7th June 2012, 08:19   #99
Senior - BHPian
 
aaggoswami's Avatar
 
Join Date: May 2007
Location: Vadodara
Posts: 4,668
Thanked: 1,416 Times
Default Re: The Autism Thread

Recently my mom was hospitalized ( and still she has not recovered completely ) and there I could find some donation box for a firm/trust which gives attention to kids with Autism.

I dont know if this can be of any help, but I am just mentioning it here :
02652325250

Its called Disha Charitable Trust. Please note that I am not having any first hand experience of this trust, neither have I visited them. Just thought of mentioning the same if it could be helpful to anyone.

Disha Charitable Trust in Gotri Road, Vadodara - Sulekha

@MODS : If this post is inappropriate, please delete it. I just came across the firm/trust and thought of sharing it.

Last edited by aaggoswami : 7th June 2012 at 08:20.
aaggoswami is offline   Reply With Quote
Old 17th June 2012, 20:55   #100
Senior - BHPian
 
vivekiny2k's Avatar
 
Join Date: Feb 2005
Location: cincinnati, jabalpur,chennai
Posts: 1,241
Thanked: 163 Times
Default Re: The Autism Thread

Not sure if this has been discussed before, but I was reading "blink" by Malcolm Gladwell which referred to a yale study on autism to explain what might happen in a high adrenaline situations. Using FMRI, researchers were able to deduce that autistic brain uses middle part of the brain used for recognizing objects as well as faces while normal brain uses it only for objects, but other sophisticated parts of brain for recognizing faces. This is important because this way autistic brain loses all non verbal cues passed thru the facial expressions. In the study they showed "who is afraid of virginia woolf" to peter (fictional name) and tracked his eye movements. The observations give a very good insight to what's going on in his mind and could be used to channel his energy in right direction.

I tried to find excerpts from this book online but couldn't. Please post if anybody finds results of this study. The name of the researcher is Gary Klein.
vivekiny2k is offline   Reply With Quote
Old 15th January 2013, 12:49   #101
Team-BHP Support
 
bblost's Avatar
 
Join Date: Jul 2007
Location: Hyderabad
Posts: 9,640
Thanked: 6,637 Times
Default Re: The Autism Thread

Sorry for going Off Topic but wanted to share this:

http://www.newsmax.com/TheWire/monta...1/11/id/471073

Quote:
Miss Montana Alexis Wineman Takes Autism in Stride on Miss America Runway
Among this year’s contestants vying for the crown of Miss America, one sets a particular benchmark not visible in evening wear or bathing suits. Alexis Wineman — the 18-year-old wearing the Miss Montana sash — has a form of autism, the first such contender in the pageant.
bblost is offline   Reply With Quote
Old 16th January 2013, 18:52   #102
Senior - BHPian
 
tanwaramit's Avatar
 
Join Date: Aug 2005
Location: Dilwalon ki Dilli
Posts: 1,886
Thanked: 333 Times
Default

Saw this story in The Hindu.

Parents who use it can share feedback for others.

http://www.thehindu.com/todays-paper...cle4299980.ece

Last edited by tanwaramit : 16th January 2013 at 18:53.
tanwaramit is offline   Reply With Quote
Old 26th February 2013, 15:11   #103
BHPian
 
Join Date: Feb 2006
Location: bangalore
Posts: 297
Thanked: 106 Times
Default Re: The Autism Thread

Thought I will share it here and will be useful for someone. I am not associated with this in any way. Got it in a email though my apartment group. I have not added the full testimonial. You can get in touch with Manas for more details.

Regards,
m8002

Full Testimonial Link : https://groups.google.com/forum/?fro...nt/RDFxqgJKKYI
-------------------------------------------------------------------------------------



Advance Acupressure (treatment by using grain size magnets tied on
fingers with tape) and Yoga in combination, done in right way and in
right direction, helps in healing all type of ailments (major / minor)
especially, any brain disorders like Autism, ADH, Delayed milestone,
Mentally retarded child, Cerebral / Optical atrophy, Cerebral palsy,
Mongolian child, Alzheimer, Anxiety, Depression, Insomnia etc.

This NO Medicine method is much faster, easy to learn, reliable,
durable with NO side effects.

* We will be visiting Chennai for 2 days from 28-Feb-2013.

* We are starting a new batch of yoga class (open for all) from
10-Mar-13, in HSR layout (Bangalore). Please join and reap the
benefits. +919342863255, +919449853702, 080-41609291

* We shall be in USA from 01-April-2013 to 31-May-2013. People
interested in attending / arranging Yoga / Acupressure / Meditation
classes or getting treatment can contact @ (INDIA +91-80-41609291,
+91-9449853702) OR (USA 646 673 5476).

Here is a testimonial of a 14 year old Autistic boy, showing gradual
improvements in his condition, giving solace to his mother and giving
the world a new dimension on treating such child.

--- Testimonials ---

My name is Chetna Joshi. I am a resident of Singapore. I am the mother
of a 14 year old boy named Neel diagnosed with a problem called
Autism. Since the time when he was 2 years of age, we have been doing
various kinds of therapies and diets for him. Things have changed for
the better over the years but there are several issues that we are
still struggling with.

I was apprised of Manas's magnet therapy through my cousin Vibha here
in Singapore and on her recommendation I decided to give it a try for
my son.

I flew down to Bangalore last year in April, 2012 and stayed there for
2 days (7-8 April 2012) during which I learnt how to align the magnets
on small strips of sticking tape with the help of the diagrams
provided by Manas. It was quite easy to follow the instructions and
Manas and Shalini were very helpful throughout the learning process.

I have been doing this therapy for over 10 months now and we have seen
the following improvements:

1. Neel is off all strong allopathic medication (for Autism)
completely since 10 months. We were giving him Paxil, Valtrex, Tennex
and Nizoral to address the issue of hyperactivity and other Autism
related problems. I feel especially relieved that he is not under all
the harmful medications and he is much better in his hyperactivity.
2. Initially, it was difficult for us to feel the improvement in Neel,
however, people who were seeing him after a while were commenting that
he is becoming better. eg. in June 2012, when we were in a restaurant
that we visit quite frequently, one of the staff member remarked that
Neel's behavior had improved considerably. We were very happy to hear
our belief consolidated by someone outside home
.........

Last edited by m8002? : 26th February 2013 at 15:15. Reason: added link
m8002? is online now   Reply With Quote
Old 30th March 2013, 11:55   #104
Team-BHP Support
 
Samurai's Avatar
 
Join Date: Jan 2005
Location: B'lore-Manipal
Posts: 22,351
Thanked: 14,178 Times
Default Re: The Autism Thread

The Apple iPad is a great tool for autistic kids. My son has been using it since last year.

Samurai is offline   Reply With Quote
Old 30th March 2013, 15:14   #105
BHPian
 
r0ckstar.1's Avatar
 
Join Date: Nov 2011
Location: Bangalore
Posts: 141
Thanked: 63 Times
Default Re: The Autism Thread

Samurai,

Never knew this thread existed on TBHP. I have more respect for the forum now, more than ever. You and your wife have done a wonderful job for the community by having this thread. Such good information available for someone seeking guidance on Autism.

Background from me is that, my son, who is 4+ years now, was also diagnosed for mild autism about a year ago. I have twin boys and the other one is quite fine. i went through the same pattern as you did with Nimhans (with Dr Sheshadri), Chardrashekar institute and several others. Can't tell you the amount of time I spent on INternet and talking to specialists in the last year. My wife and other family members were in denial and only recently have been coming to terms with it, but i stuck to my observations and research and went ahead with the therapy. Cutting the story short, in the last year, we made the choice of putting them into a montessory (in Jayanagar) and also to speech/ABA therapy (at samvaad in Indiranagar). there have been immense improvement (slow, but steady) in his behaviour and speech skills and we couldn't be more happier for him (touchwood).

Like most of you mentioned, diet plays an important part of a special child and we do our best (with lot of difficulty) to curb their demand towards sugar and diary products. Would like to know more on how to tackle any other ingredients that might improve, like gluten. My son loves eating chapatis and rotis. He may not eat rice, but wants his share of chapatis everyday. maybe we can meet and share some more of our experiences. NOt sure if gluten is having any impact on my son though.

on the schooling front, my opinion is never ever get your kid with autism symptoms to a regular school. We initially got our kids admitted to Kumaran's and just about a week before their preschool started, got a panic attack when we learnt that there would be 50+ kids in a class and our kids hardly had any good communication skills. we made a request to the school adn the management have been very kind to cancel their admission and repay the entire amount back. They even recommended us to the best montessory in this area and we are always thankful to them for that. Didn't want to keep the twins apart and hence got both of them to montessory. I don't regret that decision at all now.

Annual reports for both the kids have been encouraging and i look forward to the next year. I continue with the speech therapy and any other things i learn that might make a positive impact on my kid.

Thanks for pointing to the sutradhar.com website. I will go there tomorrow and do some shopping.

@Nilanjanray and Samurai: Shall PM you my contact number. Would be happy to meet you guys and share my learnings with you and more importantly learn more from you guys. Keep up the good work and I am happy to answer any specific questions on the thread.

Cheers

Last edited by r0ckstar.1 : 30th March 2013 at 15:15. Reason: corrections.
r0ckstar.1 is offline   Reply With Quote
Reply


Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads
Thread Thread Starter Forum Replies Last Post
The Team-Bhp thread of shame (Pray you arent mentioned in this thread ) speedsatya Street Experiences 10 24th February 2012 14:27
Wi-fi linked to childhood autism!!! Venkatesh.C Shifting gears 11 26th November 2007 12:46


All times are GMT +5.5. The time now is 07:31.

Copyright 2000 - 2017, Team-BHP.com
Proudly powered by E2E Networks