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Old 16th April 2015, 20:05   #61
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Default Re: Dialysis : Advice, Tips & Suggestions

My father had been diagnosed with Chronic Kidney Disease about a year ago. His creatinine had increased to 3. We did a routine check last week and his creatinine had gone up to 3.8 and also had swelling and infection on his legs. We admitted him immediately to counter the infection and next day his creatinine went up to 4.2. He was treated with IV antibiotics and next day creatinine was 5.6. Doc advised to start hemodialysis, but we wanted to wait for a day and see if creat levels would go down. The very next day it came down to 5.3, however, the day after it shot upto 5.9. We started dialysis day before yesterday.
Today the Doc sent a guy for giving us options for type of dialysis-Hemodialysis or Peritoneal. It was a well orchestrated sales pitch. The sales guy showed us on paper how peritoneal was cheaper and better than hemo.
I had researched on dialysis and had come to the conclusion that Hemo was the best method and this was confirmed by the Director of the ICU who happens to be our family friend.
Also, if you do not have mediclaim, the surgeon will rip you off for inserting the fistula. In Pune, the best surgeon suggested for the procedure is Dr. Vishwanath Jigjjini.
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Old 17th April 2015, 08:33   #62
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Default Re: Dialysis : Advice, Tips & Suggestions

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We started dialysis day before yesterday.
Please read up my earlier posts on this thread. All of you need to support him. Don't let anyone worry, it's not the end of the world . Dialysis is actually a life-saver.

Your Dad might have a li'l discomfort at the start only. His body will set into the rhythm after a couple of sessions.

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Today the Doc sent a guy for giving us options for type of dialysis-Hemodialysis or Peritoneal.
Peritoneal dialysis is good as well, but it requires more effort & discipline. We found hemodialysis to be more convenient.

Question: How old is your father? If he is otherwise fit, you might want to consider the kidney transplant option too. This wasn't something my Dad could consider as he was too old & weak by the time his kidneys gave up.

Last edited by GTO : 17th April 2015 at 08:37.
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Old 25th April 2015, 23:01   #63
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Default Re: Dialysis : Advice, Tips & Suggestions

Thanks GTO. Dad is 71 years old and a kidney transplant doesnt seem possible. We have been advised dialysis twice a week, however, I'm skeptical about the diagnosis. The Doc usually advises dialysis twice or thrice a week, but it should be different for every individual, depending on how the creatinine and electrolyte levels vary each day.
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Old 26th April 2015, 13:19   #64
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Thanks GTO. Dad is 71 years old and a kidney transplant doesnt seem possible. We have been advised dialysis twice a week, however, I'm skeptical about the diagnosis.
True, it does vary from patient to patient. Plus, dialysis isn't a perfect science. The schedule & treatment will be fine-tuned depending on how your Dad responds to the dialysis.

Why are you sceptical about the diagnosis? Let me know if you have specific questions. Will try to answer.
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Old 6th January 2017, 15:20   #65
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Default Re: Dialysis : Advice, Tips & Suggestions

I was looking up info on dialysis last night and google showed me this thread in the results

As I read through the thread, I was really able to get a basic sense of what it entails and how one needs to prepared for it. Thanks to each member, who has posted their views/experiences on this thread. Appreciate it. I am feeling a bit relaxed, after reading it so far.

A bit of background - My dad (He's 71 and his creatinine has been on the higher side for couple of years now. He has managed with strict diet and fluid restrictions all the while!). needs to undergo dialysis and there is (and has been) a lot of apprehension around this. Given his current health situation - has fluid accumulation and a chest infection to go with - he's unable to get much of the fluid out of his system. His intake is restricted to around 1L per day.

Doc advised today that dialysis is needed and there's no time to go through the AV Fistula procedure. So, the docs will use the other approach of inserting tube near his neck [not completely sure what exactly it will look like].

Hoping it'll go well. Will know by evening or late night.

Thanks again to everyone for sharing their experiences and inputs. Appreciate it.

Cheers.

Last edited by girish4731 : 6th January 2017 at 15:24.
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Old 7th January 2017, 13:06   #66
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Default Re: Dialysis : Advice, Tips & Suggestions

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Originally Posted by girish4731 View Post
As I read through the thread, I was really able to get a basic sense of what it entails and how one needs to prepared for it. Thanks to each member, who has posted their views/experiences on this thread. Appreciate it. I am feeling a bit relaxed, after reading it so far.
. Fire away with any questions that might come up.

Think of dialysis as a life-saver (which it actually is). Nothing scary about it. Dialysis only gets out the dirt from the body.

The first couple of sessions are the most sensitive. After that, it'll become a way of life.

Please check his sugar & BP levels continuously after dialysis. A li'l weakness will come in, but he'll slowly get used to it.

Quote:
Doc advised today that dialysis is needed and there's no time to go through the AV Fistula procedure. So, the docs will use the other approach of inserting tube near his neck
Docs are always in a hurry :(. But for the longer term, get a fistula. Very minor operation. Start with the hand. If he's a righty, then the left hand.

Good luck to your Dad!
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Old 7th January 2017, 17:25   #67
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Doc advised today that dialysis is needed and there's no time to go through the AV Fistula procedure. So, the docs will use the other approach of inserting tube near his neck [not completely sure what exactly it will look like].
The tube near the neck which your doctor mentioned is called an IJV line. The tip of that line lies very close to the heart and it provides access for dialysis. However, it is a temporary access. It may get blocked or infected , when it has to be removed. Judging from your dad's condition as described by you, he does need urgent dialysis.
Now for more permanent dialysis access, we have Permacath or av Fistula. None the options are without complications. But I would suggest if a Fistula can be made, it should be the first option. It takes 6-8 weeks for a Fistula to mature after surgery. Hence the need for an IJV line to tide over that period.
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Old 8th January 2017, 08:33   #68
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Default Re: Dialysis : Advice, Tips & Suggestions

Thanks GTO and D4D - for writing in.

After the first session of dialysis, Dad was definitely feeling better. Much of the fluids have come out of his system. A bit weary - yes, but he's okay. BP/ Sugar - both are maintaining well. Creatinine has come down, post the procedure.

GTO -- The reason for not doing the Fistula approach is because he is already in the hospital with a viral infection and that's causing lot of discomfort overall. This was causing a market shoot up in creatinine and that's why, the doc suggested to proceed with the dialysis. [During Sep review, as an out-patient, he'd suggested to my dad that he should get the AV Fistula done, so that it's easier for him, should the need for dialysis arise].

Post the dialysis, when we met the nephro, we did ask him whether this will have to done on an ongoing basis. He explained in a very calming and relaxing manner that, we should not think too much ahead on such things. So, it's best to take one step at a time and see how the body reacts to the current dialysis. The Nephro is a very senior doc and often says it like it is - I somehow like that about his approach.

As of now, Dad's okay. A bit tired with the cough/phlegm from the viral infection. Looking forward to a happier Sunday, from his point of view.

Thanks again for this thread and the responses. Much appreciate all the inputs.
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Old 13th January 2017, 18:56   #69
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Default Re: Dialysis : Advice, Tips & Suggestions

The Fistula was done yesterday, after much improvement in my dad's overall health. The doc said, it'll be ready for dialysis in 4-5 weeks (if needed at all).

Last 2 days, in the morning Fasting Sugar dropped it a bit, but otherwise Dad has been keeping well. Has recovered from the viral infection that led to all this, in this first place (this time). He'll be back home later this evening. Have a review next week with the nephro.

Again, I must say (at the risk of sounding repetitive), I found this thread helpful in alleviating some of the apprehensions of dialysis and how it can be handled. Thanks a bunch for the different wishes, views and perspectives from all members who shared here in this thread - all have helped in some way or the other.

Wish you all good health.

Cheers!


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. Fire away with any questions that might come up.
===============
Good luck to your Dad!
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Old 14th January 2017, 09:16   #70
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The Fistula was done yesterday, after much improvement in my dad's overall health. The doc said, it'll be ready for dialysis in 4-5 weeks (if needed at all).
Good to hear of the progress. How are his creatinine levels?

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Again, I must say (at the risk of sounding repetitive), I found this thread helpful in alleviating some of the apprehensions of dialysis and how it can be handled. Thanks a bunch for the different wishes, views and perspectives from all members who shared here in this thread - all have helped in some way or the other.
That's the beauty of Team-BHP.
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Old 15th January 2017, 08:37   #71
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Default Re: Dialysis : Advice, Tips & Suggestions

It was 8.xx before the first dialysis was mandated by the doctor. Post dialysis, it was down to 4.8x. A test, before he was discharged, showed his creatinine levels at 8.xx again. Next review with the nephro is on Tue.

Let's see how things go!

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Good to hear of the progress. How are his creatinine levels?



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Old 15th January 2017, 12:19   #72
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It was 8.xx before the first dialysis was mandated by the doctor. Post dialysis, it was down to 4.8x. A test, before he was discharged, showed his creatinine levels at 8.xx again.
Ah okay, dialysis is inevitable then.

When you meet with the nephro, please also ask if kidney replacement is a viable option. A successful kidney transplant is a more longer-term solution than dialysis, but it also depends on the patient's health.
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