Someone very close to me needs medical advice, and I believe you guys can! Hello everyone,
I pondered over last 5 months before raising this issue for everyone here to assist me with. Who is this person: My Aunt 2015-2020: Was suffering from frozen shoulders (very little), little tightness at the back, and pain in the legs. Also, we realized sudden onset of her not being comfortable with heat (direct sunlight or hot water baths) which was contrary to her way of life earlier where heat would not deter her in anyway or any kind of food. Also, she started to feel that she wasn't getting full breaths as her body would not allow her to stretch her chest fully
The problems rose to the levels where exposure to direct sunlight would almost give her burning sensations across her body (from inside) and only applying some water or taking a cold shower would help.
I tried to take her to a physiotherapist or someone who can help diagnose what was wrong with her but, she due to an episode with two doctors who decided to directly give pain injections in both her legs without diagnosing the issue properly and the high pain afterwards caused her to lose all her trust in bone doctors in general (please do not frown upon her for this, as she always has trusted doctors the most and did not ever stop me from seeking medical intervention for myself whenever necessary or even for herself or her father for other symptoms).
Everything was still manageable but, she had limited her activities. 2020:
Covid Lockdown is declared. We are all at home. She makes up her mind and decides to start exercise on her own. Stretching exercises mostly. It does show remarkable results. Her leg pain in both the legs is now almost gone and she's elated to find this freedom from limping. This took around 4-5 months
She decides to tackle her back and frozen shoulders now. Stretching exercises begin. But, soon after, she starts telling us that she is able to feel knots and sensations across muscles in her body at the back especially when she sleeps or is lying around for long period of time. I confirmed it used to be there before but, now it's more pronounced
I do ask her to check it out with doctors but, due to covid we are not able to
Meanwhile, her father's situation deteriorates and he dies of heart failure in October 2020 at the age of 84. The man who didn't talk much to her all these years spent most of his time (last 2-3 months) just talking to her over the phone and in person. He would tell her all the things that we wanted to and felt like but he was not fearful of impeding death. He was staying with us from last 9 years After Grandfather's Death
Initially, aunt was sobbing most of the time, and rightly so. Within a month or two she started to recover from the grief but those KNOTS and Moving-Like MUSCLES at the back, sides of the upper body and even at the chest and abdomen is she slept on the front now started to harass her. 2021
The knotting, moving-like muscle sensations on the muscles that I mentioned above, now started to give her a really tough time. She also started to get tightness and burning sensations in the affected areas.
In frustration she tried some excruciating stretching exercises of shoulders and back to find some respite from this unusual symptoms but that did not help either and instead affected her muscles a little more I feel.
Finally, in February 2021, she confided in us of all the problems she was facing, and that's how our journey to get diagnosis for all her issues started! Feb 2021 - August 2021
1. All her bloodwork came normal
2. No diabetes
3. Thyroid was a little out of control but was rapidly bought under control
4. Dexa Scan Normal
5. Full Spine MRI was said normal by the doctor but, Discs C 2-3 and C 5-6 have bulge
6. 2d Echo normal
7. Stomach is normal as per gastroenteritis
8. Lung function and breath quality is normal as per pulmonologist
Diagnosis from most doctors:
- Muscle Weakness at the back causing all problems
- One doctor without looking at any reports said Spondolysis
What symptoms she is showing as of now:
1. Burning sensation, muscular movements and tenderness at the upper back, sides of the upper body and chest and abdomen, if she sleeps or sits with pressure applied on any of these parts for more than 10-15 minutes
2. High sensitivity to sun-heat and certain foods that contain maida
3. No sleep because of discomfort, tightness and pain
Can you please help me comprehend this? She's been having a mix of many pills to control her symptoms but, changing/altering pills mostly affects her devastatingly. She's so frustrated with many doctor's visits that she does not even want to meet any new one now. I am at loss of direction. Can you help in anyway? If yes, please do.
Medicines which she is having right now:
1. Eposoft E (twice daily)
2. Pregaba M (once at night)
3. Supracal Pro (once at night)
4. Nexito 5mg (once at night)
5. Dolo 650 (once at night)
along with:
6. Restyl (before sleep)
7. Zolfresh (before sleep)
A certain prescription I found to have worked best on her but was changed by the doctor leading to her symptoms coming back was as follows:
1. Oleanz 2.5mg (twice a day)
2. Divazep (once a day)
3. Duzela (once a day)
4. Gabator NT 400
Help!
Last edited by Dinesh_Malhotra : 23rd August 2021 at 15:04.
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