Team-BHP - The Autism Thread

Came across this blog post, I can fully identify with it.

http://www.blogher.com/identifying-a...g-autism-cults

There are people who spent a fortune on HBOT treatment in distant cities, or even bought a HBOT chamber. My wife was all gung-ho about it until I spoke to a HBOT expert in Kerala who burst the myth for us. Same goes of GFCF, mercury poisoning, etc.

Last week's (July 1st 2013) Mathrubhumi daily carried an article about a day care/clinic (Buds on Wings, near Njekkad School, near Varkala, TVM District, Kerala) for autistic kids under-14.

Highlights:

"Buds on Wings" was started by the parents (Sunil and Himabindhu) of a kid with autism.
Daycare Monday through Friday. OP on weekends.
Psychotherapy, speed therapy, music therapy, occupational therapy.
Three psychologists including clinical psychologist, speed therapist, special educator, teaching assistant. Also provides the services of a homoeo doctor.
No fee charged for economically under-privileged families.
Free summer camps also conducted.
They says there are autistic kids in families who cant even afford to pay for transportation to the clinic. They are saying that with the help of NGOs, they would be able to help even such kids.
Vocational training expected to start from next month onwards for 15+ kids.

The reports omits one important information though, i.e., how to contact them. No phone numbers, no email ids, no postal address. The only clue is that it is near Njekkad School, which I guess is this one here: Google Maps

If someone is travelling in that route, please keep an eye out for boards so that at least the phone numbers could be updated here.

Quote:

Originally Posted by Samurai (Post 3080514)

The Apple iPad is a great tool for autistic kids. My son has been using it since last year.

I have been thinking of buying a tablet for my daughter. She plays with my Smartphone all the while, perhaps better to give her a tablet of her own that she can play with whenever she wants to. But need something robust and inexpensive :).

Btw, our daughter was going to the BMI centre in Sarjapur Road. We have seen definite progress in the last 6 months - she is more responsive, articulate etc. Right now there is some flux there, hopefully things should be sorted out.

However, we are having some issues at her school since lately she has been pushing/biting/spitting on kids. I feel that this is a phase that will pass, but the school authorities are creating trouble. Looking for other options closeby, since she has to go to BMI in the afternoon.

P.S. Got stuck with some urgent family work and forgot to call you that night after 10PM. Will connect.

I am attaching a link for all the parents affected by autism and related disorders.

http://mitochondrialdiseases.org/

Please note, this is only for your knowledge purposes. This line of research is being hotly pursued world over by big pharma's and individual researchers as well.
The above mentioned site just gives a nice understanding on how this line of research might have implications for patients affected by autism, parkisons, and alzheimers.
The actual implications of the research will encompass a huge spectrum of diseases.

Thanks,
Simple_car

http://en.wikipedia.org/wiki/Stephen_Wiltshire

Quote:

Stephen Wiltshire MBE, Hon.FSAI (born 24 April 1974) is a British architectural artist who has been diagnosed with autism. He is known for his ability to draw from memory a landscape after seeing it just once. His work has gained worldwide popularity.
In 2006, Wiltshire was made a Member of the Order of the British Empire (MBE) for services to art. In the same year, he opened a permanent gallery on the Royal Opera Arcade in London.

The Autism Thread-the_maximum_level_of_awesomeness_46.jpg

Mr and Mrs. Samurai,
Thanks for putting this together. Its nice to get a perspective of what is coming in, for parents like me, whose kid was just diagnosed for Autism. I visited a pediatric Neurologist yesterday and he suspected Autism traits in my daughter. I am visiting a Child psychologist today. My daughter is 19month old and is very playful and hyperactive at all times. She has many of the symptoms of an Autistic kid. She infact reached all her milestones well before time and then slowed down with her teeth coming on time and then things slowing down everyday. Believe it or not she started walking a week after she completed 8 months and started running around within a week. I was happy then, little did I know that even that was a sign of Autism.

Quote:

Originally Posted by r0ckstar.1 (Post 3080638)

Background from me is that, my son, who is 4+ years now, was also diagnosed for mild autism about a year ago. I have twin boys and the other one is quite fine.

I have twins as well will need your help and advise in managing and upbringing the two kids together without creating a rift between them. That is the last thing I ever want to do with my kids and to myself and mywife.

It will be a long Journey, I understand that. I was suspecting it for quite sometime and now curse myself for delaying so much. I had been suspecting this for more than 7-8 months now. Long before my daughter turned one. Need Advise from parents to take the right steps now without repeating mistakes again and learning from them.

Quote:

Originally Posted by Samurai (Post 3327143)

Funda, really sorry to hear about your daughter. We have been thinking about writing a long version of all the traps that autism parents are likely to fall for. Haven't gotten around it. Will do it soon.

Thanks Samurai. I met the child pshcologist today and she said that my daughter is too young to be tagged Autistic. She also said that my daughter has a lot of signs which indicate she is a normal kid. She did acknowledge that few of her actions indicate mild Autism traits. She however said we need to focus more on training her and work on her to make frequent eye contacts and not leave her alone ever. She suggested ABA based methods to make her learn quicker. She said she has seen kids with symptoms worse than my daughter and who just turn out to delayed kids. I am just hoping for the best and am ready to put efforts rightaway whatever it may be. As I read the sooner I start the better. I will PM you, for your number and speak to you on how to deal with the situation.

Samurai,

Not sure if you have come across this, in all probability, you might know more about this than I do. Posting it here for the benefit of others as well. I was watching some videos and came across this app for children with speech disabilities.

http://www.youtube.com/watch?v=Hq9jAFf-1zo

http://www.inventionlabs.in/