Part -III: Stroke: A bolt from the Gods.
This is the concluding part of my trip report to HP during October last year. No pictures and maybe a trifle macabre. Mods are free to remove it if found distasteful. Kindly excuse spelling and formatting errors since left fingers are not (yet) nimble enough. I am told by my physiotherapist to try and adhere to my normal schedule and yes- typing trip reports on Team-BHP would help!! So here goes.
For those who tuned in now, A drive to the Valley of the Gods: Part - I & II can be read here:
https://www.team-bhp.com/forum/trave...pradesh-2.html (A drive to the Valley of the Gods - Kullu and Kangra in Himachal Pradesh) https://www.team-bhp.com/forum/trave...cedes-gle.html (A drive to the Valley of the Gods : In a Mercedes GLE)
So after a great trip , we safely came back home on the 2nd of November 2020 and went about our daily routine. Things were going. Fine when on the 19th November, a bolt struck me literally from the blue.
ON the 19th morning, I had just finished my shower when I got an excruciating pain on top of my head and my legs gave way and I was wedged between the toilet seat and the bath tub. I was trying to wear my bathroom slippers and couldn’t do so. My wife, wondering why I was in the bathroom for a long time called out and I managed to tell her that it was an emergency and that she should use the master key and. Open
the bathroom.
Note1: We have a master key which opens all rooms. Life saver, literally.
She did so, found me fallen and asked our daughter for help, but both together.
Couldn’t. lift me.
Note 2: Keep. Weight under control. 112 kgs is bad.
The neighbours came and somehow managed to drag me to the adjoining dressing room. 108 was summoned and my wife called some friends and my ex boss. In the meanwhile, the ambulance personnel, recognizing the symptoms, explained that I had suffered a stroke and speedily took me to one of the best hospitals in Ahmedabad, at the behest of my wife. Concurrently, my ex boss, after learning the ambulance personnel’s initial diagnosis, alerted the neuro team at the hospital.
Note 3: work for good companies and good people. Note 4: Map the available hospitals near by with proven specialization. Cardiac, neuro etc.
By this time I was unconscious and I am told that on arrival at the ER, I was speedily taken for ascan and. When the worst was confirmed, taken to the OR, after taking the necessary consents. Craniotomy was performed (half my skull was removed) and the blood cleaned. The skin flap was loosely fixed and I was shifted to the iCU.
In the meanwhile, my daughter had contacted my son in NJ, who managed to get a ticket on united leaving in 4 hours and due to the emergency, the covid protocols were also. Waived, I believe. By the time I got to the iCU, he had landed in New Delhi.
The first thing. That I noticed on awakening, was that my right hand. Was shackled to the bed and my left hand was useless. It was a frightening moment.
Note 5: patients are normally shackled to prevent them removing the Intubation and other stuff.
The nurse told me that no water would be given for 8 hours ( vomiting can take place leading to complications with intubation and all. and yes-I had a raging. Thirst. Small sips of water or moisten the lips would be allowed. God send.
One cannot speak with a parched and dry throat and intubation. But The nurses understood that water was required and proactively Told me the bad news. Managed to tell them to put a moistened gauze piece on my lips, which gave a bit of relief- for a time at least.
My wife came in and told me that all was well- under the circumstances-and that they were waiting in a room just above the ICU. My son had arrived but had quarantined himself, as per guidelines.
My stay in the ICU for 12 days was surprisingly tolerable. Most of the time, I must have been in a stupor, I guess. I had a tube down my throat, a nasogastric tube (ryles tube) for medicines and liquids, I had a catheter, I had different sensors and monitors attached to different parts of the body.
I jokingly told my son that they had violated all my orifices except one. Oops. Spoke too soon, I guess!
Note 6: Best not to make jokes such such as the above As I was soon to understand.
My intubation was removed within 24 hours and then it wasn’t so bad. My please to my son got the. Shackles removed too, after I promised that I would not mess up the tubes or try and remove them.
Physiotherapy had started immediately. I understand that the earlier you start the better. The medicines, lack of movement and lack of proper food had given arise to constipation and after non violating pills and stuff failed to work, it was enema.
As mentioned previously, the 12 days went by fairly smoothly and I did not face any particular hardship save for the small niggles and naggles. The saving grace was that only every other joint, muscle or bone were aching. The rest were fine. As is common everywhere, the lowest category in the totem pole did most of the grunt and dirty work. The higher you were, you could lord over matters and dish out orders. The lowest category were “attendants”. But it was inspiring to see that they did not complain. In fact most of them took over additional responsibilities-within limits.
A daily routine was established and I quickly became on first name terms with most of the care givers. Hospital food is hospital food and though I was allowed unrestricted “full” diet, my appetite was very poor and I wasted most of the food. I dropped 14 kgs in 22 days. Not a recommended way to lose weight though. Once a day I would get an “outing” in a wheelchair around the ward. Very welcome diversions. I would loiter near the nurses central desk and watch the happenings. Phone rights were restricted ( in fact not allowed in the ICU) and my son would give me the summary of calls and messages. Anyway my hands were quite weak and it was an effort to lift the iphone. You learn to appreciate the importance of fitness and health during these times. I spent 12 days in the ICU and then I was transferred to a private room-much more comfortable and nice. The good part about the private room is that one person of your family can stay with you ( they were suites) and occasional visitors were allowed. Not that I wanted them-particularly during these Covid days. One of my friends would come everyday at 0630 hrs with hot filter coffee-much better than the instant stuff the hospital was providing and I used to look forward to his visit.
Compared to the ICU, the private room was akin to a stay in a 5 star hotel. The care givers were assigned patients/rooms and got to know about your idiosyncrasies and requirements. Though the private. Room had a separate, private toilet and bathroom, I was not allowed visiting rights, much to my chagrin. Initially that is. After a week or so, I was allowed and my first shower (bucket and mug bath) was enjoyable. Small things. But important. Bonding with the family was possible and I spent many an enjoyable hour playing Ludo ( and always losing) with the family. Possibly I became closer to my children than ever before.
My son took pains to remind me at every opportunity that I had been given a rare second chance and I agree. I was indeed very lucky to have received timely and competent care.
I was anxious about my missing skull, but it didn’t seem to bother the doctors who said that there was no hurry for cranioplasty and we could wait a couple of months. IN fact they recommended it. My son left for the US since it was clear that no procedure would be performed in the immediate future and after 10 days in the private room i was discharged and came home. WE hired a full time male nurse.
There is no doubt. Leaving the hospital and recovering at home was a welcome change. I started recovering faster and started doing small personal chores on my own. At first, the lack of half the skull was unnerving and I worried about what would happen if I fell or banged it at the wrong place, but in time, my anxiety level diminished. Johnson, the nurse was very competent and I even started going for morning walks in safe areas. Did 3 kms in one session, though it took me more. Than an hour to complete. It.
The PT encouraged me to do small chores and play the drums, if i was inclined to. I did. And it was very frustrating. My timing was off and my dominant right hand was far stronger than the weakened left hand and hence the sound was off too. Very, very frustrating. I had developed a frozen shoulder and could not play all the drums. (roll)
This is not only going to take effort but time too. The PT is a young man, fresh out of college ( maybe 2-4 years experience) and while pushing you to try and achieve greater scope, is careful not to injure anything. Slow going, but there is progress.
During one of my routine visits to the hospital, the surgeon felt that the Cerebrospinal Fluid (CSF) needed to be regulated which would involve putting a “shunt” in the brain which would regulate the amount of fluid and in case of excess divert It (shunt it) to the abdomen. In order to spare me the trauma of repeated operations, he advised that we do it along with cranioplasty. My son was duly informed and arrived on the day of the operation. Two, very competent, OT nurses took me to the OT and next when i woke up i was in a bed in a line in the ICU! My head was hurting real bad and i was hallucinating too. Probably the after effect of the anaesthesia. The effect of the pain and the hallucination put me in a bad mood and i am afraid i behaved quite badly with the ICU attending doctor who explained That i would feel better in another five minutes. And it was true. The good news was that i was out of the anaesthetic effect and the bad news was that my head was hurting. My bed was wheeled to a slot and hooked up to the vitals and monitors.
A dedicated nurse was assigned and for the first time, I fully understood and appreciated the care and work they need to do to take care of ICU patients. It is a laborious job and full time. This girl must have weighed half of what I weighed or even lesser, but, it was a treat to see her bravely tackling the laborious jobs and she was smart enough to get some attendants to help whenever required.
I was supposed to stay in the ICU only for 24 hours or so, but the doctor extended it to 72 hours to be on the safe side. After 3 days I was back to my suite and in familiar surroundings- almost like coming home.
I stayed another week in the room , mostly for the surgeon to check if the shunt was working properly. A couple of adjustments were done with the remote(!) and then they proclaimed me good to go. Being in no mood to look a gift horse in the mouth, I made myself scarce asap.
Its been 45 days since the cranioplasty and shunt fixation and touch wood-everything is okay. I am scheduled for a routine visit only in July now.
Thus ended my drive to the valley of the Gods, though it would be unfair to link up this event with the drive to the valley. Thank you for bearing with me and my poor formatting and language.